Alexander The operations were the easy part, recovery from them was quite another thing. We spent a total of four weeks in hospital recovering, before going home.
Alexander November fourteenth was the last day a deceased donor could be found for Alexander. That moment went by quickly, as they started preparing me for operation at six o'clock in the morning.
Alexander As not much could be said anymore before the operation, I devised this list of frequently asked questions with my father. Here I try to answer some detailed questions on the operation.
Alexander What where we doing when Alexander was not in the hospital? Since his diagnosis the care we had to give him went up tremendously.
Alexander During Alexanders donor screening it became quite clear that if we wanted him to survive, hard choices needed to be made. For a child his age, the chances of getting a liver from a diseased donor are slim. So the only other option would be a living donor. Both me and Zuzana immediately volunteered.
Alexander All children with biliary atresia need a liver transplant at some point in their life, usually before the age of 20. A Kasai procedure can make the affected liver last a bit longer, but it is only a holding action, no permanent solution.
Alexander A routine checkup turned into something more. After Alexanders' biopsy, doctors were surprised by the absence of scar tissue, and thus biliary artresia. Two weeks later, we had a check up in Groningen to see how he was doing. Except we would be staying more than a week.
Alexander For a long time, no diagnosis could be made of what was wrong Alex. The doctors had a long list of possible causes of his liver problems. With a large number of tests, scans and other examinations they attempted to find to true cause. In the end the most probable cause turned out to Biliary Artresia.
Alexander On april 5th 2017, at 19:30, my son was born in the Bronovo Hospital in The Hague. We named him Alexander Felix Bethlehem.
Travel The Chornobyl exclusion zone is a place of interest for nuclear physicists, urbex photographers and end of the world-fans alike. I happily found myself in the position to check it out.
Travel For the graduation ceremony of Zuzana's University degree, We had to pick a nice location. All options considered, Edinburgh turned out to be the best. We spent a nice long weekend exploring the city, celebrating, and eating lovely food.
Travel My brother and I had the great opportunity to accompany our father on a business trip to Canada. He had to give a lecture at Statistics Canada, so we decided to stay for a week and walk around the city of Ottawa.
Work My previous post about Romans alerted me to the fact that this summer, it is 20 years ago that I started my working life.
Journal Last Friday I travelled to the local archeological theme park 'Archeon', as they had some Roman legionnaires over for two weeks. This offered a great opportunity for some photography, and possibly some conversations on life 2000 years ago.
Travel London is a great city to visit. Having been there quite a few times now, the experience is always different. To celebrate my dad becoming special professor at the Leiden University, we decided it was time for a city trip.
Gear The 105mm is currently the best Macro lens Nikon has on offer. I bought it to replace my 60mm Macro lens. Does it live up to the hype? Is it worth the investment?
Website I finally jumped off the cliff, and migrated hayobethlehem.nl to Wordpress. But why? I hear you ask.
Journal We just came back from a short trip to view the Delta Project, and a road trip through the Zeeland province.
Journal My dad was cleaning his attic, and found one of his old photo cameras. He gave it to me to tinker with it. So I started to research the little old Praktica a little bit.
Journal Celebrating the reinstatement of the Dutch monarchy 200 years ago, the Dutch government organised a number of events. I attended one of them.